The Patterns of Perception in Parkinson’s disease (PoP-PD) project co-produced a pair of booklets, to open up conversations about Parkinson’s dementia.

• Thinking and memory changes in Parkinson’s. Designed for people living with Parkinson’s and their families, this booklet provides information and support about Parkinson’s dementia. It is freely available via Parkinson’s UK.
• A toolkit for detecting and managing Parkinson’s dementia. Designed for healthcare professionals, this booklet provides practical information on the diagnosis and management of Parkinson’s dementia and dispels the idea that there is nothing that can be done about Parkinson’s dementia. It is freely available via the Parkinson’s UK Excellence Network.

The booklets were co-produced alongside Parkinson’s UK, healthcare professionals and people living with Parkinson’s. You can read more about this process here.

They have been adopted by Parkinson’s UK as their official resources on thinking and memory changes in Parkinson’s, which will enable them to reach many people living with Parkinson’s and those working in the Parkinson’s community.